Wednesday, June 30, 2010

Medpedia Launches Rare Disease Community

 

 

 

# 4687

 

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Medpedia is an open platform connecting people and information to advance medicine. Medpedia is created in association with Harvard Medical School, the Stanford School of Medicine, The University of Michigan Medical School, the UC Berkeley School of Public Health, and leading health organizations around the world.

For more information, visit Medpedia.com.

 


For nearly a year now my blog (along with many others) have been syndicated through the Medpedia family of news and analysis sites that are mirrored on the Medpedia web portal. 

 

Over the past year the site has been continually expanding its offerings. 

 

In A Medpedia Family Way

Medpedia Unveils 3 New Resources

 

Visitors to the site can browse the various blog feeds by category. You’ll find Avian Flu Diary under the Public Health listings.

 

Browse News & Analysis by Channel

 

Yesterday Medpedia announced the opening of a new Rare Childhood Disease community.  Since this is something that would be of interest to some of my readers, I’ve reproduced portions of the press release below.

 

By all means, check it out.  And if you haven’t perused Medpedia recently, give it a look.

 

 

 

MEDPEDIA PLATFORM EXPANDS WITH ADDITION OF RARE DISEASE COMMUNITY

RareSpace Leverages Medpedia’s Technology Platform

SAN FRANCISCO, CA (June 29, 2010) –Medpedia today announces RareSpace, an online knowledge sharing platform designed in partnership with the R.A.R.E. Project and the Children’s Rare Disease Network to advance research and share information about the rare childhood diseases that affect 22.5 million American families. This resource is available now on Medpedia at http://www.medpedia.com/communities/274-RareSpace.

 

"RareSpace is a unique and valuable tool for families caring for children with rare diseases," says Jonathan Jacoby, CEO of the R.A.R.E Project. "With the help of Medpedia.com, RareSpace will become a safe place to share important information aggregated from the rare disease community at large, which is vital to finding hope for children."

 

Parents, physicians, medical researchers, patients, advocates and others interested in rare diseases are encouraged to participate in discussions and share information about genetic diseases, innovations in research, standards of care, and best practices in treating rare diseases and disorders. RareSpace also includes translational research and discussions of possible cures for diseases. Medical professionals in RareSpace will answer questions about treatment, best practices, and how to best help these children and their families. Anyone with an interest in rare diseases is invited to join at http://www.medpedia.com/communities/274-RareSpace.

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